Mycetoma Patient Friends Association

 

 

History

In 2008, The Mycetoma Research Center (MRC), Soba University Hospital, University of Khartoum, Khartoum, Sudan has established Mycetoma Patients Friends Association for patients’ care and support, community behavior modification and to raise funds for research and community work. It is now a registered charity association in Sudan with the number 2088. The Association is working with DAL Group-Sudan and Hagar Foundation-Sudan for the mobilization of community leadership and non-governmental organization to support the mycetoma patients’ nationwide.

What is Mycetoma?

Mycetoma is a chronic, progressively destructive morbid inflammatory disease. Usually, it affects the foot but any part of the body can be affected. Infection is most probably acquired by traumatic inoculation of certain fungi or ‎bacteria into the subcutaneous tissue. It may spread to involve the skin and the deep structures, resulting in the destruction of bones, massive deformity, disability and loss of function, which may require amputation of the affected part. Mycetoma could occasionally be fatal. Many patients tend to seek medical attention late due to many factors, most commonly due to their low socioeconomic status, the slowly progressive painless nature of the disease and the lack of awareness.

Goals

 

  • To help mycetoma patients, especially the ones with low socioeconomic status, by providing the necessary medical, financial and psychological care they need to control the disease progression as much as possible by cooperating with different local and international associations.
  • To help the poor patients who are unable to get their medication and provide it by seeking those who are able to afford and also through the cooperation with corresponding associations in other countries.
  • To educate communities and patients about the disease and to fight the wrong concepts that they embrace about Mycetoma.
  • To keep up with the latest scientific and cultural developments and updates regarding the disease and its effects, locally and internationally, and to share such developments with all members for more benefit that also facilitates dealing with patients.
  • To establish and implement meticulous guided projects which represent the association’s goals.
  • To collaborate with corresponding global and local associations and to participate in various periodicals, publications, and leaflets related to Mycetoma.
  • To construct seminars, lectures, exhibitions, conferences, and publications relating to Mycetoma and to collaborate with corresponding scientific societies and medical faculties in universities and the Doctors’ Union.
  • To improve the performance of the medical services and staff members in all hospitals and medical centers when dealing with Mycetoma.
  • To establish centers for the treatment and care of Mycetoma patients in different parts of Sudan.

Values

M   Maintain perspective for innovative impact

P   Patient-centered local and international partnerships

F   Focus on Mycetoma patients’ health care services

A  Advancing Mycetoma Research and accountability and credibility

OUR MISSION

 

We are committed to optimizing Mycetoma patients provided care, health services, and prevention measures. We are also keen on creating a well-informed public about the disease. Furthermore, we are motivated in conducting more research and projects that will help control the disease. Finally, we are dedicated to constructing more local and international relationships.

OUR VISION

A world free of Mycetoma disease

 

Medical

  • Prosthesis and prosthetic rehabilitation and physiotherapy

  • Treatment and surgery

  • Diagnostic tests and procedures

  • Portable clinic for outreaching activities

Socio-economic

  • Transportation fees

  • Guesthouse

Education

  • Leaflets

  • Posters

  • Medical and Awareness campaigns

Environment

  • Animal cages rehabilitation

  • Houses rehabilitation

Other projects

Shoe distribution

GET INVOLVED

Do you want to do something to help Mycetoma patients in need? Explore how to get involved with MPFA Global by using your gifts and talents to empower the patients

How can we help Mycetoma Patients?!

Make a Donation

Bank account no. 25529

Al-Jamaa Branch, Faisal Islamic Bank.

Become a Volunteer

Join us in our fight against Mycetoma worldwide and become a member or a volunteer.

Volunteers process

Download and fill the form

Send it to mpfaglobal@mycetoma.edu.sd

MPFA staff

Management and Administration Team

Abdel Razig Osman, General Administrator

Rowa Fathelrahman Omer, Administrative assistant

Projects and Operations Team

Emmanuel Edwar Siddig Francis, Director of Projects

Eiman Siddig Ahmed Saad, Deputy Director of Projects

Marketing, Communications and Campaigning Team

Dania Mohammed Ibrahim Zaid, Director of Public Relations & Marketing

Hadil Yassir Attalla Balla, Deputy Director of Public Relations & Marketing

Volunteer Management Team

Basamat Ali, Director of membership and communications

Safa Abdelmoneium, Deputy Director of membership and communications

Policy Development and Research Team

Abdallah Abdelmunem, General Secretary

Mohammed Adam Tibin, General Secretary

Fundraising Team

  Omnia Babekir, Finance Manager

  Abdallah Abdelrazig, Finance Coordinator

Honorary Members:

Prof Ahmed Hassan Fahal

Mr. El Sammani Wadatallah

Dr. Sahar Mubarak Bakhiet

Dr. Najwa Adam Mhmoud