MRC NEWSLETTER

The Mycetoma Research Gaps Seminar

Thursday, 13th July 2017, The Ministry of Higher Education & Scientific Research, The Grand Hall.

The Mycetoma Research Centre, University of Khartoum, WHO Collaborating Centre on Mycetoma had conducted a seminar on the Mycetoma Research Gaps on Thursday, 13th July 2017 at The Ministry of Higher Education & Scientific Research The Grand Hall.

Read more: The Mycetoma Research Gaps Seminar

A training course at the Erasmus Medical Center, Rotterdam, Netherlands

Rowa

Dr. Rowa Fathelrahman 

Research Assistant,

Mycetoma Research Center

Erasmus

 As part of the continuous professional development activities of the Mycetoma Research Center, University of Khartoum staff, I had the chance to attend the Summer Program of Epidemiology at Erasmus Medical Center, Rotterdam, Netherlands. It was an excellent introduction to the various Epidemiology concepts and its practical application in scientific research. It was conducted by highly professional experts from different parts of the world, and it was designed in a way that combined both to the theoretical and practical aspects of Epidemiology. The duration of the program was three weeks. Every week a new topic was discussed. The programme had enlightened and broadened my Epidemiology knowledge

Read more: A training course at the Erasmus Medical Center, Rotterdam, Netherlands

Artists visit to the Mycetoma Research Centre

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A large number of artists and media professionals initiated a group called “We are with you” to fight chronic diseases through art. Their first activities were on 7th of August 2017 in the patients’ waiting hall of the Mycetoma Research Centre (MRC) at in Soba town. They recited poems and sang songs with patients and their co-patients, between cheers and tears from the audience, and the singers promised to support patients and the centre to eradicate Mycetoma.

Read more: Artists visit to the Mycetoma Research Centre

Medical and Health Mission to Um Gar Island Region,


UMGAR

Report on the Mycetoma Research Centre, University of Khartoum
Medical and Health Mission to Um Gar Island Region,
the White Nile State, Sudan
15-17th November 2017

Overview:
The Mycetoma Research Centre (MRC), University of Khartoum, a WHO Collaborating Centre on Mycetoma in collaboration with the Ministry of Health, White Nile State, the Association of Aid & Relief, Japan (AAR), the Institute of Endemic Diseases (IEND), University of Khartoum, Bakht EL Ruda University and Yanabee Alard Foundation had conducted a medical and health mission to Um Garr island region, the White Nile State, Sudan in the period 15-17th November. This is the sixth mission to the region.

Read more: Medical and Health Mission to Um Gar Island Region,

Music, Drama and Fine Art Utilisation

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Music, Drama and Fine Art Utilisation: An Innovative Method for Mycetoma Health Promotion and Advocacy

Background
Mycetoma is one of the badly neglected tropical diseases, characterised by painless subcutaneous mass that forms multiple sinuses which usually produce purulent discharge and grains. This localised chronic granulomatous inflammatory disease if untreated early and appropriately can spread to affect the deep structures and bone producing massive damage, deformities and disabilities. It can spread by the lymphatics and blood to produce distant secondary satellites associated with high morbidity and can be fatal. Still, there is massive knowledge gap in mycetoma epidemiology and hence the lack of objective and effective control and preventive programmes. Currently, the available disease control method is early case detection and proper management. However, the majority of patients present late with immense disease and for many of them, heroic substantial deforming surgical excisions or amputation are the only prevailing treatment options. Mycetoma has many negative impacts on patients, families and community in endemic regions.

Read more: Music, Drama and Fine Art Utilisation

Mycetoma Press Conference Japan, Tokyo

japan1On the 28th November, a Mycetoma Media Seminar; Mycetoma: a devastating neglected infectious disease was organised by the DNDi, Japan and was conducted at United Nations University. It was addressed by:

Read more: Mycetoma Press Conference Japan, Tokyo

Report on the Mycetoma Medical & Health Third Mission to Wad Onsa and Wad El Nimir villages

Report on the Mycetoma Medical

Report on the Mycetoma Medical & Health Third Mission to Wad Onsa and Wad El Nimir villages, Sinner State 31st March - 1st April 2016

The Mycetoma Research Centre (MRC), University of Khartoum in collaboration with the Institute of Endemic Diseases (IED), University of Khartoum and Sinner State Ministry of Health (SMOH) had conducted the third field study to Easter Sinner region which included Wad Onnsa and Wad EL Nemir villages.

Read more: Report on the Mycetoma Medical & Health Third Mission to Wad Onsa and Wad El Nimir villages

OUTREACH COMMUNITY ACTIVITIES

Outreach Community Activities 5 Clinic

The establishment of a Regional Mycetoma Centre in an endemic region

The MRC in collaboration with Sinner State and local community leaders in Wad Onsa has established the Wad Onsa Regional Mycetoma Centre in Wad Onsa village for early case detection, medical and surgical management of patients, conducting community based services and health education activities. The regional centre is also a field research unit for the MRC.

Read more: OUTREACH COMMUNITY ACTIVITIES